Abstract
Purpose
To examine parent–child agreement regarding a child’s health-related quality of life (HRQOL) among three health status groups.
Methods
Parent–child agreement was evaluated for three health status groups of a population-based sample: (1) children with mental health problems (N = 461), (2) children with physical health problems (N = 281), and (3) healthy controls (N = 699). The KIDSCREEN-27 was used to assess HRQOL. The children were 9–14 years of age.
Results
Intraclass correlation coefficients were mostly good across all HRQOL scores and health status groups. This relatively high level of agreement was also reflected by the following findings: first, the AGREE group was the largest in three out of five HRQOL subscales in all health status groups; second, when disagreement occurred, it was often minor in magnitude. Despite this relatively high level of agreement, the means of self-ratings were significantly higher for all HRQOL scores and health status groups than the means of proxy ratings. These higher self-ratings were especially pronounced among children with mental health problems in certain HRQOL domains.
Conclusions
Even though the level of parent–child agreement regarding a child’s HRQOL is relatively high, it should be considered that children (especially those with mental health problems) often report better HRQOL than their parents. It is, therefore, highly recommended that both proxy- and self-ratings are used to evaluate a child’s HRQOL comprehensively.
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Acknowledgments
We thank all children and parents for their participation. Furthermore, we express our thanks to Fabian Dey for writing some of the data-cleaning programs; David Faeh, Yuri B. Suris, and Katharina Zogg Matt for helping us with the classification of CSHCN; and Alois Tschopp for his statistical consulting. This work was supported by the Swiss National Science Foundation (325130_125486) and the Swiss School of Public Health plus.
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The authors declare that they have no conflicts of interest.
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Dey, M., Landolt, M.A. & Mohler-Kuo, M. Assessing parent–child agreement in health-related quality of life among three health status groups. Soc Psychiatry Psychiatr Epidemiol 48, 503–511 (2013). https://doi.org/10.1007/s00127-012-0556-z
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DOI: https://doi.org/10.1007/s00127-012-0556-z