Reaching and engaging hard-to-reach populations with a high proportion of nonassociative members
- PMID: 17968045
- DOI: 10.1177/1049732307307748
Reaching and engaging hard-to-reach populations with a high proportion of nonassociative members
Abstract
Unlike research on "associative" hard-to-reach populations, such as those at risk of AIDS, which has been subject to extensive methodological scrutiny, few studies have explored strategies for researching nonassociative hard-to-reach populations: those whose members do not normally have contact with other members. This article contributes toward rectifying this imbalance. The literature review includes issues of representativeness, use of membership lists or other centralized sources of information, innovative ways of gaining access to nonassociative population members, and an overview of multiple approaches. The authors then explore strategies adopted by one of them in recent studies of three such populations in the United Kingdom of people with spina bifida and hydrocephalus, advanced Parkinson's disease, and skeletal dysplasia resulting in very short stature. They consider previously unreported problems with using membership lists and discuss strategies for finding population members not in contact with others in the population or membership organizations or professionals.
Similar articles
-
Reaching every district - development and testing of a health micro-planning strategy for reaching difficult to reach populations in Mongolia.Rural Remote Health. 2009 Apr-Jun;9(2):1045. Epub 2009 Apr 15. Rural Remote Health. 2009. PMID: 19368489
-
Building better oral health: a dental home for all Texans.Tex Dent J. 2008 Winter;Suppl:1-56. Tex Dent J. 2008. PMID: 19363885
-
Libraries reaching out with health information to vulnerable populations: guidance from research on information seeking and use.J Med Libr Assoc. 2005 Oct;93(4 Suppl):S74-80. J Med Libr Assoc. 2005. PMID: 16239961 Free PMC article. Review.
-
Gang youth as a vulnerable population for nursing intervention.Public Health Nurs. 2009 Jul-Aug;26(4):346-52. doi: 10.1111/j.1525-1446.2009.00789.x. Public Health Nurs. 2009. PMID: 19573213 Review.
-
Vulnerable older people in the community: relationship between the Vulnerable Elders Survey and health service use.J Am Geriatr Soc. 2008 Jan;56(1):8-15. doi: 10.1111/j.1532-5415.2007.01540.x. J Am Geriatr Soc. 2008. PMID: 18184202
Cited by
-
Randomized Study of Survey Recruitment Strategies for Parents of Autistic Children.J Pediatr Health Care. 2022 Sep-Oct;36(5):470-473. doi: 10.1016/j.pedhc.2022.05.008. Epub 2022 Jun 12. J Pediatr Health Care. 2022. PMID: 35705390 Free PMC article. Clinical Trial.
-
Teeth Tales: a community-based child oral health promotion trial with migrant families in Australia.BMJ Open. 2015 Jun 11;5(6):e007321. doi: 10.1136/bmjopen-2014-007321. BMJ Open. 2015. PMID: 26068509 Free PMC article.
-
'Reaching the hard to reach'--lessons learned from the VCS (voluntary and community Sector). A qualitative study.BMC Health Serv Res. 2010 Apr 8;10:92. doi: 10.1186/1472-6963-10-92. BMC Health Serv Res. 2010. PMID: 20377850 Free PMC article.
-
Engaging Gypsy, Roma, and Traveller Communities in Research: Maximizing Opportunities and Overcoming Challenges.Qual Health Res. 2019 Jul;29(9):1324-1333. doi: 10.1177/1049732318813558. Epub 2019 Jan 2. Qual Health Res. 2019. PMID: 30600758 Free PMC article.
-
The Experience of the Infant Entering Refuge (Shelter) Setting with Their Mothers After Fleeing Family Violence.J Fam Violence. 2021;36(8):953-965. doi: 10.1007/s10896-020-00226-5. Epub 2020 Nov 26. J Fam Violence. 2021. PMID: 33262557 Free PMC article. Review.
Publication types
MeSH terms
LinkOut - more resources
Full Text Sources
Medical
