Service delivery for people with chronic fatigue syndrome: a pilot action research study
- PMID: 8477887
- DOI: 10.1093/fampra/10.1.14
Service delivery for people with chronic fatigue syndrome: a pilot action research study
Abstract
Chronic fatigue syndrome (CFS) is a symptom complex which while mild in some cases is severely debilitating in others. Long-term ill health leads to greater use of resources but in the case of long-term CFS the anecdotal evidence suggested a low compliance with the available options and a high level of both patient and general practitioner dissatisfaction. This pilot study sought through repeated action research cycles to start to identify culturally and contextually sensitive forms of language and models for service delivery suitable for people with CFS in a general practice setting. It worked through a number of action research cycles, to initiate the identification of conceptual models acceptable to both doctors and to patients suffering from CFS, self-management options which encouraged the body's ability to heal itself and services and delivery mechanisms which met patient needs within health provider options.
Similar articles
-
How do women with chronic fatigue syndrome/myalgic encephalomyelitis rate quality and coordination of healthcare services? A cross-sectional study.BMJ Open. 2016 Apr 4;6(4):e010277. doi: 10.1136/bmjopen-2015-010277. BMJ Open. 2016. PMID: 27044578 Free PMC article.
-
Review of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: an evidence-based approach to diagnosis and management by clinicians.Rev Environ Health. 2015;30(4):223-49. doi: 10.1515/reveh-2015-0026. Rev Environ Health. 2015. PMID: 26613325 Review.
-
Chronic fatigue syndrome. The patient centred clinical method--a guide for the perplexed.Aust Fam Physician. 2003 Nov;32(11):883-7. Aust Fam Physician. 2003. PMID: 14650782
-
Mindfulness-based cognitive therapy for people with chronic fatigue syndrome still experiencing excessive fatigue after cognitive behaviour therapy: a pilot randomized study.Clin Psychol Psychother. 2013 Mar-Apr;20(2):107-17. doi: 10.1002/cpp.793. Epub 2011 Oct 9. Clin Psychol Psychother. 2013. PMID: 21983916 Clinical Trial.
-
Exercise therapy for chronic fatigue syndrome.Cochrane Database Syst Rev. 2016 Dec 20;12(12):CD003200. doi: 10.1002/14651858.CD003200.pub6. Cochrane Database Syst Rev. 2016. Update in: Cochrane Database Syst Rev. 2017 Apr 25;4:CD003200. doi: 10.1002/14651858.CD003200.pub7 PMID: 27995604 Free PMC article. Updated. Review.
Cited by
-
The expressed needs of people with chronic fatigue syndrome/myalgic encephalomyelitis: a systematic review.BMC Public Health. 2009 Dec 11;9:458. doi: 10.1186/1471-2458-9-458. BMC Public Health. 2009. PMID: 20003363 Free PMC article. Review.
-
Dismissing chronic illness: A qualitative analysis of negative health care experiences.Health Care Women Int. 2019 Mar;40(3):241-258. doi: 10.1080/07399332.2018.1521811. Epub 2019 Mar 4. Health Care Women Int. 2019. PMID: 30829147 Free PMC article.
-
A Literature Review of GP Knowledge and Understanding of ME/CFS: A Report from the Socioeconomic Working Group of the European Network on ME/CFS (EUROMENE).Medicina (Kaunas). 2020 Dec 24;57(1):7. doi: 10.3390/medicina57010007. Medicina (Kaunas). 2020. PMID: 33374291 Free PMC article. Review.
-
Behavioural modification interventions for medically unexplained symptoms in primary care: systematic reviews and economic evaluation.Health Technol Assess. 2020 Sep;24(46):1-490. doi: 10.3310/hta24460. Health Technol Assess. 2020. PMID: 32975190 Free PMC article.
-
Effects of unsupportive social interactions, stigma, and symptoms on patients with myalgic encephalomyelitis and chronic fatigue syndrome.J Community Psychol. 2018 Nov;46(8):959-971. doi: 10.1002/jcop.21984. Epub 2018 May 4. J Community Psychol. 2018. PMID: 30311972 Free PMC article.
MeSH terms
LinkOut - more resources
Full Text Sources
Medical
Miscellaneous